In the past 48 hours, some amazing things have happened, some good things, and some worrying things have happened.
First: Amazing!!! Mr. Toes hand drew a “map” of a gaming program called minecraft. Himself. With details. Then he proceeded to tell me an elaborate (for him) story that went with it!!!!!! I only understood about half of the story (not sure if this was attributable to his garbled language skills or my complete ignorance of the Minecraft game), but it was incredible! His imaginative, creative play skills just jumped! Then he wowed us again by cutting up paper to make the Pacman ghosts and gave them features by drawing them in by hand!! He then took this long, skinny, yellow balloon, bent it in half so it made the yellow Pacman guy!!!!! (Small motor skills, planning, elaborate play and set up)!
Second: Good. We got word that his adrenal gland infusion test came back negative for any problems!! (FYI alert the meds you need to buy and bring with you to the appointment are freaking out of control expensive!!! Who the hell gets away with charging $170.00 for a couple of cc’s of meds??) Also he took his B12 injection without a peep. Watched the whole thing. He was trying to figure out when to start screaming, but it was over before he felt anything!
Moving On….
Third: The worrying…. Mr. Toes is anemic and he has been looking very pale lately. He has also mentioned 3-4 times in the past two months that his “brain” hurts. Doc (Gastroenterologist) says we need to see our pediatrician and discuss these headache’s because kids his age shouldn’t be having that many. Hmmmmm.
And so I go back and focus on the beginning of the post and reside once again in denial and bliss!! (For now).